Stem Cell collection update ... and blog hiatus

I have pretty much put this blog to sleep as far as posting goes. I may resurrect it in the future if necessary (though of course I hope never to have to!) But I'm hopeful that it will remain a useful resource for people recently diagnosed with Mantle Cell Lymphoma - just to show that  it can be dealt with; you can get through treatment, often without too many side effects; and that life does indeed go on and almost go back to normal once in remission! That's how it's been for me. Yes there are the odd health issues/things I have to deal with, but I love my life and feel very positive about it continuing a long and good time!

I'll mostly be posting little health updates into my journeys blog as part of everyday life. But I did just realise/remember that I had a Stem Cell collection back in May 2010 which I posted about there, and I don't think that can really be counted as a 'little health update'! It was quite an ordeal (in a minor kind of way!) ...  I'm not going to re-post all of that here, but instead link to the post so that people can read about it. So, here's the link: http://susiegb.blogspot.com/2010/05/health-not-yoga.html. (The 'ordeal' bit was more of a mis-management/understanding issue I hasten to add!)

Good blood test results, but no sleep!

I went to have my monthly IV-IG infusion yesterday. The nurses always do blood tests before they start, and I was pretty pleased to see that my WCC and neutrofils had come back into the normal range! They'd been down for the past couple of months ...

WCC - 4.4 (normal range 4.0 - 11.0)
Neutrophils - 2.6 (2.0 - 8.0)
Platelets - 123 (150 - 450)

Platelets are still down but they may well always be down! In fact, looking at the previous post they were exactly the same then (July)!!

I'm seeing Dr B again next month before the December infusion. He's ordered up some extra blood tests that I'll get done before I go and see him. Hopefully all will be well! :)

However, I should note that it's actually 4.00am right now! I am not sure that I have slept at all - if I did it was only for 15 minutes here and there! I'm feeling OK at the moment but I don't expect I will by the end of the work day ... sigh! I'm wondering if this is because of one of the drugs they give me prior to the infusion, to stop reactions. Some 'cortico steroid'? Does that sound right? Who knows ... ! Anyway, I think I'm going to refuse to have this drug again next time. I really don't like tossing and turning all night! I'll see what the doctor says at least!

A couple of days ago it was the Melbourne Cup - the (horse) 'race that stops the nation'! It's one of those things like the Grand National in England. Everyone at work has Melbourne Cup lunches, wears silly hats and gets big TVs in to watch the race at work! And then there are the sweeps. You know - you put in $1, $2, $5 (whatever the amount for that sweep) and you are randomly assigned a horse. Well, one of the young IT Helpdesk guys was persuaded to set 2-3 of these these up for our department, despite protestations that he didn't know how to. So he spent I would estimate at least a day setting up these complex Excel spreadsheets that would randomly assign a horse to a person. And then we discovered after the race that he hadn't realised that he had to 'fill' each sweep! And there was at least one sweep where the winning horse hadn't been assigned to anyone!

I don't think he's ever going to live this down! I told the nurses and they all fell about laughing! At least he's ensured he won't be roped in to do this again next year!!

Great news!

I'm so happy - today I had my annual CT scans and they came back clear! I don't have to have another one for 12 months - unless of course something else shows up. I was reasonably confident that nothing would show up, but of course I was feeling fine when I was first diagnosed so that isn't really an accurate measure!!

My haematologist is still talking about trying for a stem cell collection. But remembering that we were never able to collect stem cells when I was in hospital, he wants to wait for some new drug(s) that assist in the production of stem cells for harvesting to be available on a trial here in Australia that I should be able to access. I don't know if/when we'd go for an autologous stemcell transplant - he told me that he has some MCL patients that had chemo followed by an auto SCT, and others that didn't have the transplant, and both groups are doing equally as well. But he agreed it would be a good thing to have 'in our back pockets' if it was possible.

The other good news is that he'd ordered a fairly full blood test, partly to test my immunoglobulin levels. I've been on monthly IV-IG infusions for about 7 months now, and they are definitely showing an improvement. As I said to him - I was pretty convinced they were improving because it is now over 6 weeks since I've had a chest infection needing me to go onto antibiotics. All this year, the previous gap between antibiotics has been around 10-12 days at most! He repeated that with IV-IG infusions, they start to kick in around the 6 months mark, and it isn't till around the 12 months mark that the full effect is felt.

This is some of the results:

igG - 5.7 (g/L) (normal range = 6.6 - 14.9)
igA - 0.8 (g/L) (normal 0.7 - 3.6)
igM - 0.3 (g/L) (normal 0.4 - 1.6)

Haemoglobin - 120 g/L
Platelets - 123
WCC - 5.4
Neutrophils 3.3

All good! Well, Platelets are slightly reduced but nothing to worry about. And they did some 'cell surface marker analysis' and he said very few B cells showed up, and NO mantle cells. Which is a very good thing!!!

Drinking wine is good for NHL!!

http://www.genengnews.com/news/bnitem_print.aspx?name=53145815

".. This study was the first to examine the link among patients with non-Hodgkin's lymphoma. Han and her colleagues analyzed data about 546 women with non-Hodgkin's lymphoma.

They found that those who drank wine had a 76 percent five-year survival compared with 68 percent for non-wine drinkers. Further research found five-year, disease-free survival was 70 percent among those who drank wine compared with 65 percent among non-wine drinkers ..."

Couldn't resist posting this when I read about it on one of the NHL boards! I've drunk wine for more years than I care to remember, so it's all good news!! I did stop when I was going through chemo, but started drinking wine again a few months later ... in moderation of course!

Everything seems to be going well health-wise. I've been on antibiotics for 3 weeks now - am trying to get rid of the cough which comes back everytime I stop a course. So I'm taking 3 lots - 30 days worth in all, and then we shall see. If it comes back again I think I'll have to go back to the chest physician again.

Lately I've been going to have my monthly IV-IG infusions without seeing Dr Bentley. He said just to come and see him if I had a problem. I'll be having a CT scan in the next couple of months so will be seeing him about that, but otherwise life is just flowing on happily normally!

New month new problem! (But I am smiling!)

Well, that's not quite true - I think I caught this cold at the end of last month, not February! But whatever - I caught a cold from someone (and don't think I don't know who you are!), and apart from the general 'wrongness' of geting a cold in the middle of summer!, it gradually went to my chest (of course!) and I started to feel worse and worse. By last Thursday I had to take the day off work and went to see my local GP. I did try to ring both my specialist and the respiratory physician but one was on holiday and the other had gone overseas!!

Anyway, turned out I had a temp of 38.4degC so the GP was more than happy to give me some antibiotics. They started to take the edge off by the weekend (which was an unavoidably busy weekend working on a website - someone had already come down from Rockhampton - 1000ks away to work on it with me!) So it was really lucky I started to pick up then! I've still got all the trappings of a cold - blowing my nose constantly, coughing, coughing, coughing ... But I've got my normal levels of energy back and feel fine.

Today was the next immunoglobulin infusion, plus another doctor's appointment. Dr Bentley told me I'd have to expect to catch things like colds easier, and for them to take longer to be got rid of - great! He changed the antibiotics I'm on, and also I'd had another blood test last week and he gave me the results.

Haemaglobin - 113
WCC - 8.4 (!!!)
Neutrophils - 6.2

They are certainly something to be excited about - especially the WCC. Normal range is 4.0 - 11.0!!

My immunoglobulin levels were also tested - I know nothing about these, although apparently when I started having the IV-IG, it was 2 which is apparently extremely low! It has gone up to 5 - he said he would have been happier with 6! But at least it's on the way up.

So - that's the latest issue of my health news! Stay posted for next month's issue ...

Report from doctor's visits (plural!)

Well, this week I somehow had 2 doctor's appointments plus the 2nd IV-IG (immunoglobulin infusion - see, I'm getting to know all the shortcuts!)

On Monday I saw Dr Bentley, followed by the IV-IG. Meeting with him was good - he even gave me a hug, and said I was looking well! He gave me the results from the bloodtest I'd had before my previous visit last December:

Haemoglobin: 111
Platelets: 131
WCC: 3.7
Neutrophils: 1.9

Not too bad. They were a bit down from October, but probably because of all the antibiotics etc. I'd been taking. I'll have another bloodtest before I see him again in a month's time, and hopefully they'll be further up then.

The IV-IG went much quicker than last time. I had all the drugs before starting, to stop me having a reaction to it, and I think it took about 3.5 hours this time. I'll time it properly next time so I know!

Then today (Wednesday) I had an appointment with a respiratory physician. Because of the recently-discovered bronchiectasis that I have. I had to do this 'lung function' test, and all that blowing out hard etc. and re-doing and re-doing - it made me feel that I didn't have that much 'lung capacity' after all! But then when I went it to see the doctor, he ended up telling me that I had above-average lung capacity (for my age!!) So I was pretty pleased about that! I'm sure it's from the ashtanga yoga breathing (ujjayi breath) I've been doing for the past 7 or so years of yoga!

Apart from that, he did various pokings and proddings and asked heaps of questions (as well as reviewing the CT scans). And ended up saying that it was very mild, and as long as I kept up the yoga and other exercise I wouldn't need to do any of the other exercises the physios had given me. And just reiterated what both Dr Bentley and my GP said, that if I get a bronchial infection I'd need to go onto antibiotics quickly, etc etc. And no need to come back to see him at the moment ...

So all in all, pretty good news. I'm feeling pretty happy about things!

It wasn't so bad!

So, I had the first gammaglubulin infusion (IVIG) today, and apart from the fact that I had to get up at 5.15am to get to the hospital for 7am, it wasn't that bad really!

Of course I did have a few reactions which slowed things down. They up the flow-rate gradually and once they started doing this I started to have a bit of difficulty breathing. (Nothing dramatic - just couldn't breathe in as much as normal.) So, the dose went down again for a while. Then the nurse upped it again a couple of times, and I suddenly started shivering, and feeling really cold. So the nurse rang my doctor, and I got given an antihistamine and some cortizoid steroid or other. They had to wait for half an hour for them to kick in, and then my infusions were re-started, this time successfully! The flow rate get getting raised with no problems!

It was nice to see all the old familiar faces, and they were all pleased to see me too (even the cleaners and people who bring meals round remembered me!) And sitting in the day chemo room is a really interesting experience! People who haven't had cancer, or a close friend/relative with it would never imagine it like this. Everyone is really cheerful and happy, reading their books/newspapers/magazines, listening to their iPods, chatting with their friends who've come in with them. Not the sort of picture that would come to mind about having to have chemo! Because the type of chemo I had (HyperCVAD) was very intense, I actually had my treatment as an in-patient in the hospital - stayed in for around 14 days each time. So this is a new experience for me!

Anyway, I guess it won't be that bad, especially if I either don't have those reactions again, or else I'm given the drugs at the beginning. It took about 5 hours this time but without all the stops and starts it should get back down to no more than 4 hours I think. Apparently the effect is cumulative - it won't make that much difference after just one treatment, but will build up over the next few months. We shall see ... :)

Sigh! and a bit of a hissy fit!

Well, I saw my specialist today. And as suspected (see this post on my other blog!), because my immunoglobulin levels are so low I do have to have the monthly infusions ... in fact I'm having the first one on Friday!

I'm just going to have a bit of a hissy fit, OK, and then I'll calm down and it'll end up being a part of my 'normal' (!) life ... :)

But right now, this second - I so did not want this to be happening to me! I know it's not a huge thing in the whole scheme of things, specially after what's happened to me in the last year or so! But somehow it really got to me. Almost more than when I was first diagnosed, oddly enough!

Actually, just re-reading that makes me smile and feel somewhat better! I really do need to get a grip on reality!

The waiting room was heaving with people and Dr B was a little harassed! I think there had been some double-bookings or something. And there was me trying to weazel out of having to go through this whole regime (which I might add, is open-ended - ie. every month indefinitely!!). I kept bringing up this and that that I'd heard about on forums, or read on blogs, and he basically kept coming back to the fact that he was the lymphoma specialist and he sees/treats first-hand many many lymphoma patients. Really, (and this is me speaking now) - who is the lymphoma expert? Me because I've read a lot about other people's experiences with it, or him who is dealing with patients and treating their problems every day ... ?!

I think it's the bronchiectasis that I've developed that is the main culprit. If I hadn't come down with that, then even though my immunoglobulin levels are low, I might well have been able to avoid the infusions. But apparently once you have that, it's a prime source of infection in your lungs and because I have a damaged immune system I'd be likely to end up in hospital for a week each time!

So - there's no avoiding it! As I knew all the time. My feeble attempts at knowing what was the best treatment for me better than him were always bound to fail. And I really do know that in a month or two, this will turn into 'no big deal' - as my friend kept telling me at lunch! I was in such a state through the appointment that I never asked about my blood counts or asked a lot of the other questions I had ... I'll be seeing him again in a month and hopefully I'll do all that then!

I did go up and see the nurses after my appointment (Dr B's rooms are on the ground floor of the hospital I was in) and they were very pleased to see me (and the home-made fudge I'd brought them as a Christmas present!) Big hugs all round - and they said they'd make sure I got through the infusions quickly!!

I do feel better after all that whinging (Aussie term meaning complaining!) and stuff! Hopefully I've now got it off my chest and I shall just go back to enjoying life! Which is good, let me not forget that! :)

It's true - I'm really feeling a lot better!

Just a short note to say that the CT scan of my chest showed signs of a chest infection - nothing else! So I was prescribed some antibiotics for the infection which I started taking at the beginning of last week. Also last week I went back to the acupuncturist I had been seeing in the intervals between chemo treatments last year. I'd suddenly remembered him and wondered if acupuncture could help get rid of this infection/virus/whatever.

And - one or both of them have had a significant effect! I didn't say anything for a few days, because in the course of this illness I have thought I was getting better a few times, only for it to come back with a vegeance a day or two later. But I really am feeling so much better - yippee!!

I am looking forward to teasing my doctor when I see him again just before Christmas, by telling him that I don't know if it was his antibiotics, or the acupuncture treatment that fixed me up!!

October visit to my specialist

Saw my haematologist on Wednesday for my 3-monthly check-up. It seemed like I/we spent most of the visit talking about my current (not-related) health issues with sinusitis + a "post-viral cough". Which I have posted about interminably on my other blog! I said to him - I'm treating you like my GP! But he didn't mind - I think he likes to know pretty much everything that's going on with me health-wise ...

He had the results of the bloodtest I'd had the previous week (more about that later) and, having done a quick check of me told me that there were no signs of the lymphoma coming back. Well, I hadn't thought there were, but it was still very nice to have this emphasised to me.

He did say that, because my immunity had been pretty much wiped out last year when I was having chemo, there was a faint possibility I had some obscure infection in my lungs that hadn't shown up on the chest XRay my GP had got me to have, and so I'm having a CT scan of my chest next week. I didn't know CT scans would show this sort of thing. Anyway, it'll be good to - either knock out that possibility, or else find out and get it fixed. It's been over 6 weeks of interminable coughing and I just want it to end!!

Anyway - to my blood test results. Great news!! They've gone up again - and I would have thought that all the effort my immune system must be making fighting this 'whatever', would have brought it down!

WBC: 4.5
Neuts: 2.6
Platelets: 152

All now within 'normal' range! Yeayy!! It's taken a year, since my last chemo. And the WBC and Neutrophils have pretty much doubled in the last 3 months. All in all, I'm extremely pleased!!

I'll hear from him later this week about the results from the CT scan. Apart from that I'm going back to see him just before Christmas ...

Portacath came out

This month another step away from being a cancer patient and back to normal life! My portacath was taken out on Thursday 7th August. Happened at the Wesley Hospital, same place where it was put in. Brisbane Private Hospital, ('my' hospital) being smaller and not having the advanced Radiology facilities to do this.

I had it done under twilight sedation, which I much prefer to full anaesthetic. Pretty simple - just half a day there. Then Lorraine came to collect me and drive me home, as I couldn't drive that day.

I think I probably had slightly under-estimated the effects this would have on me. I assumed it would be like the insertion, which was really easy. Or am I just not remembering it accurately? When I had it put in I went straight from there to the Brisbane Private Hospital, onto mabthera (rituxin), and then chemo the next morning. So there was a lot of new stuff going on!

Anyway, I was expecting a bit of pain/discomfort for a couple of days, and then nothing. So when it still hurt to touch 4-5 days after I began to wonder/worry. But having raised this on the Webmagic NHL board I heard lots of stories about discomfort/pain lasting for 2-3 months, so decided to stop worrying! After all, it'd been in there for 13 months, so it's bound to take a bit of time before it settles down.

And now it's 2 weeks since I had it removed. I've had all the stitches out and it's feeling a lot better. I don't really imagine it's going to be a problem at all ... :)

Great scan results, Good report from doctor

Well, readers of my other blog will know that I had PET and CT scans a couple of weeks ago at the end of June, and the results were a big Negative, which is an even bigger POSITIVE in terms of my health ... In other words, no evidence of disease! So that was great news. Today I saw my doctor for my 3-monthly appointment, and we went through my big list of questions (which I always seem to accumulate to take to him!) Of course there were a few that I somehow didn't get to, but most of them got answered.

I asked him about Stem Cell collections (actually I meant to ask him about potential Stem Cell Transplants, particularly a mini Allo, but somehow we didn't get to that!) Anyway, after my last chemo we were trying for a stem cell collection, but the required stem cells just weren't materialising, so it never happened. I'd heard about a new drug called AMD3100 that supposedly mobilises 5-8 times more stem cells than Neupogen alone, so I asked him about this. He said that it's still in trials, and isn't available for use in Australia. But he said that as my blood counts were improving (more about that later) he thought that maybe at the beginning of 2009 we might be able to try again for a stem cell collection, using some other drug that I hadn't heard of and can't remember (!) He said that if we tried now it would most likely not succeed as my blood counts weren't high enough, but hopefully in a few months' time it would. He also said that he wouldn't be planning on giving me chemo as part of that procedure.

On the blood test results, my levels are slowly (slowly!) getting better:

Haemoglobin - 111
Platelets - 106 (first time they've been in 3 figures for a year!)
White Cell Count - 2.8
Neutrophils - 1.2

Still low compared to when I started on this 'interesting' journey, but creeping up all the time. I read somewhere about someone whose blood levels took over 2 years to recover. Doctor B said that mine may never recover to what they were but they would be 'acceptable' and enough to keep me from getting infections etc - in other words, to do the job my white blood cells are meant to do.

What else - oh yes, my portacath can come out! I've got an appointment for that to happen in about 3 weeks' time - yeay! As he said, if I need it again it isn't any big drama to put one back in.

We discussed future scans. He said it was up to me whether I had them regularly. He feels he can tell what's happening with me without them, so it depended on whether I needed that extra check. He said he probably wouldn't recommend PET scans anyway as they often give false positives. In the end we agreed on yearly CT scans, which I'm happy about. Interestingly, he said something to the effect that early detection of a recurrence wouldn't affect treatment. In other words, it didn't matter if it wasn't found for a while ...

I also told him about a NY Times article I'd read recently stating that cancer was becoming more of a chronic illness than a 'death sentence' (which I'd never taken it as anyway!) He said that was exactly what he'd been telling students recently!

So anyway, I'm very happy about things! I see him again in 3 months time - no doubt with a new list of questions! But right now I'm happy to let my remission from NHL take a back seat in my life.

I'll be back posting here in October after my next appointment - in the meantime those who are interested in following my 'normal life' can do so here!

:)

New template - I did it!

Well, I just couldn't leave this blog with that other boring, boring template! So I've found another one. It came from the same place as my other new one (see the link at the bottom if you're interested).

And now to my final health report for now! I had another blood test last Monday and saw my doctor the following day. (my birthday!!) The blood test results were - well, I was going to list them all out but now I can't find them!! If I find them later I'll come back and change this post, but in the meantime ... Basically my WBC levels had come down from the last test (done about 6 weeks ago). But the doctor reckons that these previous test results were probably reflecting the booster neupogen injection I'd had a few weeks earlier. If we take those results out of the equation, then my WBC levels are coming up. So he was pleased, and so was I (once I'd had that explained to me!)

I'll be having scans (PET and CT) at the end of June, and will see my doctor a couple of weeks after that (though he did say he'd ring the results through to me). Assuming all is well with them (which we both are!) he said he's not going to get more scans (or BMBs) done unless there's some other indication of problems down the line in the future. I guess I'll be seeing him every 3 months or so for a while. But I am clear to have a flu injection (which I wasn't last time I saw him), and I can do anything I want! Like go to India, Morocco (that's next year!) etc etc! Yippeee!!!

So, I'll post updates on my health here when there's news. Let's hope there's none, or very little!! No - I'll report here whenever I see the doctor / have tests, etc. But otherwise, for my normal, (happily boring!) life, you'll have to go to my other blog! And, see you here again in July ... :)

Gone back to my other blog

Had to happen - I'm going back to my original blog - http://susiegb.blogspot.com, and will just post health updates here on this one. Hopefully that won't be happening too often - in that hopefully there won't be much to report on health-wise!! I will post after my meeting with my haematologist next Tuesday. But apart from that, anyone who wants to know what I'm up to will have to go to my other blog!

It's been great doing this - I definitely recommend blogging to anyone who goes through anything like this. Because it's very easy to forget about how it all was, and it's so good to be able to re-visit it from a distance and see how it was, and how far you've come ... :)

And I will definitely update this template sometime!

rope-able!

I cannot believe I was so stupid! I had decided I'd go back to my old 'journeys' blog soon, and leave this one, now that I'm in remission(!) I still intend to update it with health-news, but I'm moving away from my health being the dominant issue in my life (wonderful to be able to say that!) and so wanted to go back to the other one.

So I had been been looking around the web for nice new Blogger templates ... I found a very nice one, but at one point I'd come back to look at the code for this blog's template to see where it had come from. And I forgot. So I uploaded the new template here, and because I hadn't saved the old (lovely!) template, that one is gone!!

grrr.... #@!!@#@!

Anyway, I've found another simple template for here as a stop-gap, and will keep my eyes open for (yet) another template for this site. I'm keeping the other one (a goldfish theme!) for my 'journeys' blog, which I'll probably go back to in a week or so. Just kind of waiting till I've seen the doctor again next week ... :)

busy busy busy ... :)

Had a great, if very busy, weekend. But - come to think of it, it's Monday after a busy busy weekend and I'm not tired. So that's really good - my energy levels must still be on the rise!

So, on Saturday I rushed around on the weekend, organising things for the big party, then on Sunday went to a choir alto rehearsal, out to lunch with relatives and got back in time (well a bit late, but still!) for a friend who'd come over for me to give her a lesson on her new, cute-as-anything iPod nano! She's off on a big overseas trip on Wednesday, to the US and then the UK for a couple of months. She won a Churchill Fellowship to investigate the establishment of a collaborative print/poetry small press! (I copied that blurb from the website!) I'm also looking after her chooks while she's away!

And I did manage to get to yoga class too, which was good. It's interesting, my flexibility and strength are still not back as they were, so I'm using the opportunity to approach most poses as being new to me, and sort of seeing them through new eyes, seeing new aspects to them.

Practising with someone different

Well, when it came time to go into Brisbane to my yoga class on the weekend I didn't feel up to the 40 minute drive, so instead I practiced at home with Mr Swenson! It's the first time I've done that and it was good. Though I only got as far as the marichyasanas, and wasn't doing full vinyasa or anything. But it felt really positive. I've had a real block about practising at home for ages - best I was able to do was practice at work at lunch-time (don't ask me what the difference is - I don't know!) Maybe now I'll find it easier ... !

I actually got the David Swenson DVD last year in the hope I could use it when I was in hospital or something - but that idea didn't go anywhere as I ended up not being able (strong enough) to practice then. Now I think I'll get the John Scott DVD too.

Last week I ended up going to the university health clinic and seeing the doctor. Hadn't seen her since I started my treatment last year so she was pleased to see me and catch up on how it'd all been. But - because my cough had been hanging around and getting worse, I felt I needed to get it checked out. Had a chest x-ray and turns out I've got (or had) bronchitis! Great!! Onto the antibiotics again and now (4 days later) am feeling much better. Not coughing myself sick at night etc anymore !!!

And ... life is good :)

For Dog and (particularly) Cat lovers - very funny!

Someone at work sent me this, knowing I was a cat person. I loved it!

Excerpts from a Dog's Diary......
8:00 am - Dog food! My favourite thing!
9:30 am - A car ride! My favourite thing!
9:40 am - A walk in the park! My favourite thing!
10:30 am - Got rubbed and petted! My favourite thing!
12:00 pm - Lunch! My favourite thing!
1:00 pm - Played in the yard! My favourite thing!
3:00 pm - Wagged my tail! My favourite thing!
5:00 pm - Milk bones! My favourite thing!
7:00 pm - Got to play ball! My favourite thing!
8:00 pm - Wow! Watched TV with the people! My favourite thing!
11:00 pm - Sleeping on the bed! My favourite thing!



Excerpts from a Cat's Daily Diary. ..

Day 983 of my captivity. My captors continue to taunt me with bizarre little dangling objects.

They dine lavishly on fresh meat, while the other inmates and I are fed hash or some sort of dry nuggets. Although I make my contempt for the rations perfectly clear, I nevertheless must eat something in order to keep up my strength.

The only thing that keeps me going is my dream of escape. In an attempt to disgust them, I once again vomit on the carpet.

Today I decapitated a mouse and dropped its headless body at their feet. I had hoped this would strike fear into their hearts, since it clearly demonstrates what I am capable of. However, they merely made condescending comments about what a "good little hunter" I am. Bastards.

There was some sort of assembly of their accomplices tonight. I was placed in solitary confinement for the duration of the event. However, I could hear the noises and smell the food. I overheard that my confinement was due to the power of "allergies." I must learn what this means and how to use it to my advantage.

Today I was almost successful in an attempt to assassinate one of my tormentors by weaving around his feet as he was walking. I must try this again tomorrow -- but at the top of the stairs.

I am convinced that the other prisoners here are flunkies and snitches. The dog receives special privileges. He is regularly released - and seems to be more than willing to return. He is obviously retarded.

The bird has got to be an informant. I observe him communicating with the guards regularly. I am certain that he reports my every move. My captors have arranged protective custody for him in an elevated cell, so he is safe. For now................

party, and blood levels, and easter

In the order of the blog title ...

1. I'm having a party! Yes, shy, retiring me is getting out there and having a party! I figured I've got so much to celebrate after the past few months, and decided to combine it with my birthday next month. And for the invitation, I found this photo of me taken more years ago than I like to remember! It was in India in the 70s ... :) Just a few birthdays ago, as it says!!

So the party is going to be held in the back yard of this lovely cafe in Brisbane - they are doing the catering and all. I just have to invite the people, extract a contribution from them (!) and do the music!! No doubt pictures from it will appear here afterwards! It's pretty exciting! All part of my new year's resolution to be open to new opportunities!


2. And next: I had a blood test yesterday and when I rang my doctor for the results I was fully expecting to be told they'd fallen and I needed to have another injection to stimulate the white blood cell production. But the injection I had last month seems to have jump-started my bone marrow! My haemaglobin had gone up to 82 (from 50) and my neutrophils are now 3.1 (up from 1.something)!! I was thrilled and my doctor is really pleased too!

3. And I had such a lovely time in NSW (new south wales) at Easter! My brother-in-law and nephews came to my Mum's on Good Friday and took us out to lunch. That evening she had arranged for some people to come round for drinks (my mother being an indefatigable entertainer!). Then on Saturday we went to Sydney, had yum cha in Chinatown (with Jo and Emma), and then saw the Elton John musical - Billy Elliott. Based on the film ... Just fantastic! Apparently it's going from Sydney to New York - so all you NY-ers who are into muscials - go and see it! It's still on in London apparently, too. And finally on Sunday we had a quieter day - phew!

Got home on Monday afternoon, just in time to receive 5 chooks coming to stay for a few months while their owners go overseas! Fresh eggs again - yum!

rushing ...

I smiled when I read yoga gumbo's blog this morning - why am I online! Well, I'm online coz I'm at work and since I've achieved something I have been struggling with for ages (a 3-level CSS navigation menu) I've got a bit of space to hang out! But I'm flying to Sydney tomorrow. Haven't done any packing yet, and I'm still intending to go to choir practice tonight. So before I go out tonight I've got to somehow pack without my cat seeing me doing this! Not easy - specially when I have no idea what I'm going to take! Then go off to choir practice 45 minutes drive away. Then tomorrow morning I've got to get Miss Mieke Pussycat into her carry-box, leave the house by 7am, drop said pussycat off at the pet motel, and then get to the airport parking place by 8.30am. A big ask ... So I really better not imagine I can get my laptop out at home tonight!

Despite all my whinging about colds (which I've still got!) I managed to get to yoga on the weekend. So glad I did - it was wonderful. Haven't managed to do any more since then because I'm still not feeling 100% and am doing my best to 'be sensible' and look after myself. But I'm taking my mat with me to Sydney (well, country NSW) and hope to be able to give it a go down there.

I'm also feeling a bit ashamed of myself, making such a big deal about what is really, just a cold, albeit a nasty one. I think I need to try and ease myself back from this health obsession! I know it's all understandable and everything, but still - I need to get a reality check about what I'm getting upset about! Save it up for something that deserves being upset about!